Can chronic illness actually lead to the best book life? I would venture to say that it can and, in my life, has. I won’t tell you exactly what you should be reading here. (Sign up to my newsletter and get a free novella or check out my Goodreads reviews for more of that.) But I do want to share how books have become self-care for me.
In high school and again in college, I ended up as a virtual shut-in, only venturing out for doctor’s appointments, usually driven around by my parents. I found solace in reading, but I needed more and I found that outlet in writing. Books were a blessing from God in the form of consuming and creating.
Recently I have had to abandon another preventative medication due to yet another allergic reaction. One more doctor has said told me, “That’s it. You’ve tried everything I know of to try.” To compound the situation two other medications that help regulate my depression and anxiety ended up running out due to a huge doctor office/pharmacy/insurance company issue. Those with chronic life issues will understand all too well. By now I have those medications, but the depression and panic attacks linger as my body readjusts.
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Chronic Illness Means We Keep Trying New Things
I tell you all of this not to garner sympathy, but to share encouragement. This bookish spoonie has decided to forge a new path, one that I have been slowly moving towards for a while. I hope in sharing this news, we can each look at what’s not working in our lives and make adjustments to find a better way. I have come to the conclusion that if I want to get well, my body is not going to do it by conventional means.
Okay, so I’m not just staying here in this dark place anymore, I’m going to be a person doing something. I’ve spoken quite frequently here and on my Instagram account about how vital walking has become in the search for healing. There are many days that I can’t tolerate the light, but my routine is now to walk my son to his bus stop in the morning and let him jabber away. We laugh together until the bus drives away and after he leaves, I take off walking.
Allow Yourself to Be
I don’t go far or fast right now. My body just won’t let me, but I’m choosing to move, like my fitness instructor Beth Learn has encouraged me to do. She argues against the all-or-nothing mentality. In several of her spoonie-friendly workouts, she tells us that even stretching counts. “This is enough, this has to be enough.” I hear in her voice in that particular restorative yoga workout the frustration with a society that distills women down to what we can or can’t do, instead of being who we are.
So, who am I being? I am a woman who lives a life riddled by pain and darkness, but I fight for the light. That makes me a warrior bookworm. Now I love being outside my house, going for those walks when I can, drinking in the sound of birdsong, and I stay home and stretch with Beth when I can’t. I am actually able to drive most days and spend time with my children getting them to and from places. This is more than just doing, it is fighting the battle of pain to be the woman I want to be.
Which leads me to the next life-giving practice I am experimenting with. Are you ready for this? Green light in a dark room. No really, green light in a dark room. In this article, there have been early studies linking a decrease in migraines from exposure to LED green lights. Like, from 24 migraine days a month decreasing to 7. What’s the treatment look like? 2 hours in a completely dark room except for a green LED light. My husband read the article and ordered a package of them immediately. Weird, right? And, good grief, who has time to sit in a dark room with a green light for 2 hours a day? What’s a bookish spoonie to do? READ!
Do Books Qualify as Self-Care?
So, now after my walk, I spend my time in the morning reading my Bible and journaling with a green LED light. I call it my green light therapy with God. His Word refreshes me and reminds of what is true and right. Writing to Him in my journal, I brainstorm how to apply what I’m learning, I give Him my frustrations, and I praise Him for at least three things each day.
I end my day taking a bath with a good book and green light. All those books that have been piling up in my To Be Read stack? I’m getting through them and my reading goal for the year will soon be reached. I’m discovering new authors, studying different writing techniques, and relaxing. I don’t know yet if the light is making a difference for daily migraines, but I do know I feel better during the therapy itself. It might be all the indulgent reading I feel justified in enjoying. (You can find my reviews here or sign-up for my newsletter for a more in-depth look.)
Chronic Illness and the Best Book Self-Care
I mean, I write and read for a living, right? So this should just be part of my life now. And I’m learning so much about how to relax and let go of things. I keep thinking I’ve learned the lesson of targeting my stressors and uprooting them, but it isn’t actually things that stress me. It’s toxic thinking. So I’m becoming ferocious in catching when I am stressing myself out and taking a step back.
Social media causing you stress? Start scheduling posts. Not enough time to schedule, you say? Take a little break. Breathe. Pray. Journal. Read a book. Enjoy a walk. Talk to a friend. All these things are helping me calm down and they might help you, too. And now that I have given myself permission to try different and unusual things to try to get well, I may actually get there. And even if my “well” doesn’t look normal, it will be my normal, a life I enjoy with the very best books.
About JacQueline
As the author of The Journey series, a young adult fantasy retelling Rapunzel’s misadventures, JacQueline also wrote Memoirs of a Headcase: Held by the God of Hope, to share hope in the battle against chronic pain and depression. Currently she lives in North Alabama with her karate husband and three book-crazy kids. All opinions expressed on this website come from her own experience. Do not substitute it for professional therapy or medical advice. Any affiliate links used on this website will provide additional income to JacQueline’s family at no additional cost to you.
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Photo credit: Joel Muniz, Nicole Wolf, and David Lezcano
Social Media Graphic Design: JacQueline Vaughn Roe
I think books definitely qualify as self care, hands down no doubt about it 🙂 Am glad to hear that you’re getting in some reading time. To me reading is education no matter what you read, and that’s worth something, too. Sending love!
So glad you agree! I hope you are staying safe and having a flare-free day!
Books as self care…. I love it! I also took a lot of walks to get movement and as part of my daily routine up until recently. Even a small walk can be so reviving.
Yes the love of books and movement are so good for us! Lovely to meet you. Have you read anything recently that you have enjoyed?
Hurrah- yes books are amazing! Since i stopped working because of my health I’ve read so much more so I’m with you on this.
It is so encouraging to hear back from so many others that we not only can bond over the not-so-happy chronic illness, but also the very-happy bookworm love 🙂 Praying you are having a pain-flare-free day!
Great and encouraging post! Thanks for sharing how you are using the Green Light to help with migraines. I wish I had known about that when I had them. Books are wonderful friends and self-care. I also love reading the Bible and gaining refreshment from God’s word.
Yes, books are a blessing and God’s Word soothes, instructs, and helps me grow. I’m glad you have found this to be true as well. Do you have a (current) favorite book of the Bible? (I say current because my often changes with whatever God is really teaching me in a particular season of life.)
I can so relate to this post! Personally, one of the advantages of needing to spend so much time at home, often alone is the amount of time it allows me to read books. Reading has always been one of my biggest passions and is my favourite way to spend time, so definitely counts as self-care. Take care, and enjoy your reading time!
I’m so glad we can bond over bookish happiness! What have you read lately that fills your heart with joy?
I think my chronic illnesses are leading me to my best bookish life as well.
Oh, I’m so glad! What do you like to read most?
Books definitely qualify as self care, and if we get shut down here in the UK, as I suspect we are heading for, I have shelves full of books that will keep me entertained on those long days… and my daughters have their own books to read while school is closed ! 😉
YES! I know that I am catching up on reading and writing goals at this time while encouraging my kids to do the same. I know we will get through this. Praying for you!
I completely agree reading is self care. I found your post very inspiring. There’s no doubt with everything you are doing you will forge a new path going forward.
Oh, it is so good to hear from you! I am praying you are well today 🙂